The Follicular Lymphoma Foundation
The Follicular Lymphoma Foundation
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Webinar: Relapsed Follicular Lymphoma Essential Insights
This inspiring session, which took place on Thursday, September 26th, provided the audience with valuable expert discussion and patient perspectives, with the chance to connect with the follicular lymphoma community.
Key highlights:
Understanding why relapse happens and exploring treatment options
Learning to spot the signs of relapse and the importance of regular monitoring
Discovering the latest therapies available
Hearing from a patient who’s been through it and thrived
If you're unsure about any of the terms and treatments discussed, please visit our glossary:
www.theflf.org/your-support-hub/glossary/
You can register for upcoming webinars when available on our website here: www.theflf.org/your-support-hub/webinars/
If you've found our videos helpful, please consider donating to the Follicular Lymphoma Foundation. Your support helps us accelerate research towards a cure for FL and improve the lives of those affected. www.theflf.org/donate/
[Disclaimer: This video is intended for educational and disease awareness purposes only and the information presented and discussed does not constitute medical advice. The presentations contain data and information regarding not yet approved treatments and/or off-label use which are not to be construed as recommendations. Please consult with your healthcare provider for medical advice.]
มุมมอง: 876

วีดีโอ

About the Follicular Lymphoma Foundation
มุมมอง 1843 หลายเดือนก่อน
The Follicular Lymphoma Foundation has become a beacon of hope to so many living with follicular lymphoma. With patients at the heart of everything we do, we want to make the invisible visible, the incurable curable, and support and empower everyone facing their own daunting follicular lymphoma journey. Watch this video to learn about our research programs, CURE FL Awards for investigators, Cen...
Webinar: Understanding Follicular Lymphoma Clinical Trials
มุมมอง 1.7K4 หลายเดือนก่อน
This engaging session, which took place on Tuesday, July 23rd, provided attendees with valuable perspectives and the chance to connect with the follicular lymphoma community. The webinar featured an esteemed panel, including Dr. Mitchell Smith, FLF’s Chief Medical Officer, and Professor Jessica Okosun, an FLF Scientific Advisor, who shared specialist insights. They were joined by Ms. Nicky Gree...
CMO on immunotherapy: why your voice matters
มุมมอง 2956 หลายเดือนก่อน
Curious about immunotherapy treatment? FLF CMO, Dr Mitchell Smith explains more about the latest advancements in immunotherapy treatments, including CAR-T cells and bi-specific antibodies, and shares insights on related FL research. Subtítulos en español: Hola, soy el Doctor Mitchell Smith, director médico de la Follicular Lymphoma Foundation. Gracias por responder nuestra encuesta diseñada par...
What is the potential for minimal residual disease in follicular lymphoma treatment?
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Disclaimer: This video and associated video serves to inform patients about the potential of Minimal/measurable residual disease (MRD) in follicular lymphoma research and clinical care. Patients are advised to consult with their healthcare providers for personalised treatment recommendations and considerations.
CMO on immunotherapy: a breakthrough in follicular lymphoma treatment
มุมมอง 4937 หลายเดือนก่อน
Disclaimer: This video and related article serves to inform patients about the potential of immunotherapy in treating follicular lymphoma. Patients are advised to consult with their healthcare providers for personalised treatment recommendations and considerations.
CMO on improving T-cell engagement therapies: Can we make better CAR-Ts and bispecific antibodies?
มุมมอง 497 หลายเดือนก่อน
Disclaimer: This video and related article serves to inform patients about the potential of improving T-cell engagement therapies. Patients are advised to consult with their healthcare providers for personalised treatment recommendations and considerations.
Q&A with CURE FL investigator: Dr Patricia Pérez-Galán (English version)
มุมมอง 49611 หลายเดือนก่อน
Dr Patricia Pérez-Galán is the Microenvironment in lymphoma pathogenesis and therapy, group leader at IDIBAPS - Hospital Clínic de Barcelona. We caught up with her to ask her about her CURE FL research programme, and why she is particularly interested in finding a cure for follicular lymphoma specifically. [Disclaimer: This video is intended for educational and disease awareness purposes only a...
Entrevista a la investigadora de CURE FL: Dra. Patricia Pérez-Galán (versión en Español)
มุมมอง 30411 หลายเดือนก่อน
La Dra. Patricia Pérez-Galán es la responsable del grupo de Microambiente en patogénesis y terapia del linfoma del IDIBAPS - Hospital Clínic de Barcelona. Nos reunimos con ella para preguntarle sobre su programa de investigación CURE FL y por qué está particularmente interesada en encontrar una cura específicamente para el linfoma folicular. [Descargo de responsabilidad: este video está destina...
Why is our FL Biomarker Discovery Programme crucial to FL research?
มุมมอง 348ปีที่แล้ว
Ever wondered about biomarkers? FLF CMO, Dr Mitchell Smith explains why our FL Biomarker Discovery programme is so crucial to FL research and development and how it will help propel our mission to cure FL. ​ If you'd like to hear more about how the programme went please visit here: www.theflf.org/blog/biomarker-for-reshaping-in-follicular-lymphoma-treatment/ Subtítulos en español: Hola, mi nomb...
How Can Patients Help Advance FL Research?
มุมมอง 198ปีที่แล้ว
This is a snippet taken from our second webinar, which was held on Thursday 17th August 2023, and focused on "How Close are we to Curing Follicular Lymphoma?". With patients at the heart of everything we do - we need to ensure our work is informed by people affected by follicular lymphoma. Sign up via the below link to register to our email communications to learn more about ways to get involve...
Webinar: How Close are we to Curing Follicular Lymphoma?
มุมมอง 5Kปีที่แล้ว
Our second webinar was held on Thursday 17th August 2023, and focused on "How Close are we to Curing Follicular Lymphoma?". This webinar session answers some of the most burning questions in the FL community, including: What are some of the new treatments emerging? What does it mean to cure FL? What is stopping us from getting to a cure? Would a longer remission mean a lower quality of life? Co...
Webinar: An overview of Follicular Lymphoma
มุมมอง 3Kปีที่แล้ว
We held our first ever Webinar in May 2023, providing viewers with an overview of Follicular Lymphoma. Comment below what you'd like to see discussed in our next Webinar, hope to see you there! 💜 If you've found our videos helpful, please consider donating to the Follicular Lymphoma Foundation. Your support helps us accelerate research towards a cure for FL and improve the lives of those affect...
Dr Josh Brody’s mission to CURE FL
มุมมอง 613ปีที่แล้ว
Our Associate Professor, Joshua Brody, discusses the recent developments in the Cure FL programme.
Covid and FL
มุมมอง 122ปีที่แล้ว
Covid and FL
Is Follicular Lymphoma Curable?
มุมมอง 885ปีที่แล้ว
Is Follicular Lymphoma Curable?
Fatigue and FL
มุมมอง 359ปีที่แล้ว
Fatigue and FL
Autologous stem cell treatment
มุมมอง 187ปีที่แล้ว
Autologous stem cell treatment
Repeat Treatment
มุมมอง 287ปีที่แล้ว
Repeat Treatment
Vaccine booster injections
มุมมอง 137ปีที่แล้ว
Vaccine booster injections
The CURE FL Awards introductory video
มุมมอง 71ปีที่แล้ว
The CURE FL Awards introductory video
KITE x FLF - Living with Follicular Lymphoma
มุมมอง 3252 ปีที่แล้ว
KITE x FLF - Living with Follicular Lymphoma
What is Follicular Lymphoma?
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What is Follicular Lymphoma?
Nicola's Message to the FLF Champions!
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Nicola's Message to the FLF Champions!
Match-Funding Campaign - Nicky Greenhalgh
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Match-Funding Campaign - Nicky Greenhalgh
Match-Funding Campaign - Nicola Mendelsohn
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Match-Funding Campaign - Nicola Mendelsohn
Match-Funding Campaign - Dr. Mitchell Smith
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Match-Funding Campaign - Dr. Mitchell Smith
Time To Cure Fund-Matching Campaign
มุมมอง 5473 ปีที่แล้ว
Time To Cure Fund-Matching Campaign
FLF Focus on Patients with Nicky Greenhalgh
มุมมอง 813 ปีที่แล้ว
FLF Focus on Patients with Nicky Greenhalgh

ความคิดเห็น

  • @clarissahopkins1148
    @clarissahopkins1148 25 วันที่ผ่านมา

    Thank you God bless

  • @benjaminjohnson001
    @benjaminjohnson001 หลายเดือนก่อน

    Thanks so much for these webinars!

  • @beverlymiserendino5633
    @beverlymiserendino5633 6 หลายเดือนก่อน

    Thank you for a very informative video on the use of immunotherapy being used in the fight aĝainst Follicular Lymphoma. I was recently diagnosed with Follicular Lymphoma when I had a colonoscopy and EGD. A very large polyp was removed from my Sigmoid colon, along with two other large and several smaller polyps. The large ones had to be cut out. Unfortunately, one of the large ones was diagnosed with Follicular Lymphoma. I had large, diffuse B Cell Lymphoma about five years ago and was treated with many rounds of R-CHOP at MD Anderson in Houston, TX. It went into remission. I don't know what the plan is to treat the Follicular Lymphoma but will have a PET scan this Thursday at Clearview Cancer Institute in Huntsville, AL. I will follow that up with a visit to my oncologist on Friday and discuss a treatment plan. I hope they don't just want to wait and watch it.

    • @follicularlymphomafoundation
      @follicularlymphomafoundation 6 หลายเดือนก่อน

      Hi Beverly - thank you for sharing your story - we hope your treatment goes well. Have you visited the patient area on our website? We have lots of helpful resources there, and details of support groups too. Good luck with everything. www.theflf.org/your-support-hub/

  • @sabinaalvares9206
    @sabinaalvares9206 7 หลายเดือนก่อน

    Por favor traducción a espsñol

  • @paulapiskie4599
    @paulapiskie4599 7 หลายเดือนก่อน

    I've just recently been diagnosed with FL - lymph nodes appear just a bit bigger than normal so on watch and wait but I'm wanting to incorporate other ways to try and heal myself without having to turn to chemo. I've heard that a cure could be coming soon :)

  • @chrisj8764
    @chrisj8764 9 หลายเดือนก่อน

    There is no harm in examining the issue of possible cure, but, with respect, I think this is slightly click-baity. Whether FL can be cured (which I doubt in the medium term) will only be determined over the long term in examining survival rates, so talking about this now as opposed to eg talking about treatments etc and their effectiveness or disadvantages seems to me not very worthwhile.

    • @follicularlymphomafoundation
      @follicularlymphomafoundation 9 หลายเดือนก่อน

      Hi Chris, thanks very much for your insightful comment. This particular webinar is part of a series of communications to raise awareness on FL and was a popular topic when we asked patients what they were interested in. We do delve deeper into specific aspects of current and promising future treatments, immediate areas of research and how these might be fast-tracked to find a cure (check out FLF’s Chief Medical Officer’s top highlights from American Society of Hematology). Please visit The FLF publications page for more resources on this. The recent article ‘Follicular Lymphoma: Navigating the Pathways for Clinical and Translational Investigations’ by FLF’s Chief Medical Officer, Dr. Mitchell Smith, specifically touches on the challenge of long term follow up for investigating effective treatments. Please also watch this space for future webinars and communications addressing other important questions like you have raised. Our mission at the FLF is to find a cure for FL, and fast. These conversations, debates and educational activities play an important role in highlighting the need for translational research and funding to be prioritised in FL.

  • @agustinperezsanchez9583
    @agustinperezsanchez9583 9 หลายเดือนก่อน

    Gran investigadora

  • @TheOneTrueGesta
    @TheOneTrueGesta 9 หลายเดือนก่อน

    27 year old male here, I had it in one place in my neck and finished a six month regimen of rituximab and bendamustine back in may of 2023. So far my scans have been clear and I'm hoping for it to stay on remission.

  • @tinansakadi6834
    @tinansakadi6834 9 หลายเดือนก่อน

    thank you, I'm also a patient of follicular lymphoma, and just started chemo. I'm joining from Swaziland

  • @nareshsihag8321
    @nareshsihag8321 9 หลายเดือนก่อน

    Sir my mom sufferd from follicullar limphoma also

  • @claudiazgaib1897
    @claudiazgaib1897 10 หลายเดือนก่อน

    Toda nuestra esperanza cifrada en estas investigaciones científicas, para lograr por fín la cura para este linfoma fulicular.Gracias por ésto.

  • @DonnaRedwine-j1c
    @DonnaRedwine-j1c ปีที่แล้ว

    74 year old female patient with FL. Finishing my 4th month of Retuximab and Bendamustine tomorrow. Doing well, but please find a cure! How often can it transition to a more aggressive form?

  • @DonnaRedwine-j1c
    @DonnaRedwine-j1c ปีที่แล้ว

    74 year old female patient with FL. Finishing my 4th month of Retuximab and Bendamustine tomorrow. Doing well, but please find a cure! How often can it transition to a more aggressive form?

  • @DonnaRedwine-j1c
    @DonnaRedwine-j1c ปีที่แล้ว

    74 year old female patient with FL. Finishing my 4th month of Retuximab and Bendamustine tomorrow. Doing well, but please find a cure! How often can it transition to a more aggressive form?

    • @chrisj8764
      @chrisj8764 9 หลายเดือนก่อน

      About 2-3% chance per year ie 20-30% chance per ten years

  • @Tots38
    @Tots38 ปีที่แล้ว

    Thank you, very reassuring to me, I’m on watch and wait for Follicular lymphoma.

  • @gregfraser2763
    @gregfraser2763 ปีที่แล้ว

    Maybe Rejuvenate Bio's reverse aging will make the immune system strong enough to result in a cure. I think we should start looking at alternate methods rather than the typical methods of killing specific types of cells. Also Allogeneic Transplant should be a focus by working on preventing GVHD. The curve of survival suggests auto transplant is cruel VS Allo, as survival rate after 2 or 3 years is the same. However, Allo survival rate flattens out quickly in the graph and at least provides a potential cure.

    • @follicularlymphomafoundation
      @follicularlymphomafoundation ปีที่แล้ว

      Hi Greg, thanks so much for watching our video and for your comment. I've shared your thoughts with our research team. If you're interested in ways to get involved and help shape our work you can also register here: www.theflf.org/your-support-hub/connecting-with-others/help-shape-our-work-form/. Thank you again, FLF.

  • @madhukarsaraswat9615
    @madhukarsaraswat9615 ปีที่แล้ว

    Excellent talk. Thanks

  • @LuisFernando-wq2wl
    @LuisFernando-wq2wl ปีที่แล้ว

    Excellent webinar 👏 I'm from Brazil, and my father was diagnosed with FL. I recently discovered The FL Foundantion, and its channel videos are so helpful. Thank you for the information.

    • @follicularlymphomafoundation
      @follicularlymphomafoundation ปีที่แล้ว

      Hi Luis, we're sorry to hear your father is diagnosed with FL but glad that you're finding our videos helpful. We hope to continue adding more in the coming months. Thanks for your support, FLF.

  • @traceywebb7731
    @traceywebb7731 ปีที่แล้ว

    I missed this live webinar due to commitments that cropped up last minute, so was really pleased to be able to watch it at a later date. I found the information really interesting as a person who has NHFL, I’ve had treatment and am now on maintenance. I look forward to further webinars nd hope to attend the live version. Thank you

    • @follicularlymphomafoundation
      @follicularlymphomafoundation ปีที่แล้ว

      Thank you for your very kind comment Tracey. It's wonderful to hear that you found the webinar useful and we look forward to announcing our next webinar soon.