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I will,pray for your healing 😊

Im Dario Albertini From Italy Rome I have Parkinson Im 58 I Discovery and start tò treatment Almost 4 years ago DOC.say that i have Parkinson probably 8 yars I m agre with what u Say I feel the same But sometime i feel very sad tò I keep going All the best tò u An tanks😊

Keep fighting, with daily exercise qe can go many years living a mostly normal life I was diagnosed in March of 24 but doing well exercising and supplements every single day

Hi Kim. I too have PD. Thank you! Looking forward to seeing more of you. I'm at stage 3. As you know there are 5 stages. My body changes have been disappointing of what I had envisioned my older years were going to be like. I'm 68. I also have epilepsy since age 13. Unfortunately, they always chalked my symptoms up to that. My dad had PD and I was told for years it wasn't hereditary which wasn't true. I feel I've had it for about 15-20 years now. I look forward to hearing more from you all. GBU.

Please try carnivore diet. Look up Dr. Ken Berry.

So sorry to hear about your sciatica Kim. My husband and I both had to have surgery to fix ours. We both had a spinal fusion. I have Parkinson's though so recovery was a bit longer It was a tough recovery I won't lie, but the pain is gone.

I’m glad to hear that you are doing well! I’ve had PD for almost 10 years and understand the fatigue factor. Good luck on your journey!

Hello, nice to meet you ❤ Thank you for story. I was diagnosed at 40 in 2018. Closing in on 5yrs. It’s a battle. Just subscribed ❤️

Glad you're doing well. Congrats on the leadership position. It's funny, cause I'm on the opposite end. I was in the military and often held leadership positions. Now that I'm a civilian, I told my boss that I don't want to be in a leadership position. He talked me into one...but it's not difficult. lol I think at this point, I just don't want to take on so much stress. Anyway, very cool you're spreading the word through advocacy. Keep up the great work!

Thanks Kim. Your schedule sounds very busy. Best wishes on your promotion. I had my first fall also. I used to have bad trouble with my sciatica as well. Over time hamstring stretches took care of it.

Kim, where have you been?

I am on a journey to find out ifbi have parkinson's. I started getting symptoms 3 years ago and have seen over 15 doctors. Along they way they found a tumor in my head that was removed but I continued to get much worse. My symptoms are severe muscle pain in my neck/shoulders and face as well as migraines, very stiff and no right arm swing, slight resting tremor in my right hand, lots of visual issues and dry eyes, I yell in my sleep as well as sleep apnea, drag my right foot, cognitive issues, sweat like crazy but freezing and lots of nausea, I feel like I am wearing a band around my mid section. I have been seeing a neurologist who thinks I have a leak in my spinal cord but also said I show the signs of parkinsonism/parkinson's. I haven't loss my smell and my hand writing is still pretty good but right hand is so unpredictable and I drop things or can't close my hand when I want. I also suffer from the depression and anxiety. Cry a lot for no reason. Not asking for your diagnosis but just wondering if you have similar symptoms and issues? I'm 55. I also have cogwheel in my right arm and wrist as well as hyperaflexia.

You are amazing and I so gratful you doing these videos. It has given me so much information about what you and your family is going through! I know you know I am there for you, but these videos allows the rest of us to get a small understanding of what is happening and what may happen. Keep them coming and thank you. Love ya ......Robert

Thanks for sharing!

Thanks for helping me understand you and your journey. I can't seam to find the right words, but I am glad you are sharing. Love you...Robert!

Thanks Kim. I finaly got a chance to catch up on your videos. They are great and thank you for sharing.......Robert!

Thanks for the video Kim, very helpful.

Stretching is huge! I have to do it every morning cause I typically wake up in pain. I did a genetic study with the Parkinson's Foundation (didn't include 23 and me). I will definitely look into the Fox Insight genetic test. I've done one of their study's so far.

Kim, words can’t describe my admiration for your wisdom and progress

Thank you for your video. I was diagnosed with Parkinson’s 10ths ago . I’m still working as an X-ray tech. I have good days and bad days. It’s a day at the time. Love to sing too.

I’m so glad I found your podcast I’m 54 and just got diagnosed in January. I have been feeling very lonely and scared you give me hope thank you.

Thanks for sharing your story. I was recently diagnosed. I’ve been taking sleeping pills since about 2004 and they made a world of difference. I also take welbutrin. I believe it’s definitely working for depression. I did lose a lot of weight when I started…about 15lbs. Keep up the great work and I hope things go smoothly for you.

And you’re SMILING

I can't believe your neurologist said that to you. A boring life means you sit in a chair and watch TV which is the worst thing you can do for Parkinson's. You need to stay active and exercise and have a very active fulfilled life! Maybe you should look for a new neurologist? Why does it seem like Parkinson's patients like us know more about the disease than our doctors?

Diagnosed with PD over two years ago. So glad I found your TH-cam channel! Thank you for sharing❤️

A family member has either Parkinsins or PSP. 4 movement disorder doctors haven't made up their minds. We are now with UPenn and Dr Deik. Happy with him. Carbidopa levadopa has helped with the body pain. Rock steady boxing program has helped with balance. Not sure but think the drug makes him very dizzy which he hates. We have cut back the drug to 2 pills a day cut into quarters. Pain still under control but still dizzy, just less. More isn't always better. This Dr. Very much lowered the dose. Sleep is not bad for him. Rigidity better from the drug. The Doctors don't seem to really know a tremendous amount about these conditions and each person is different! Exercise is your best friend!

I am diagnosed this year

Thank you for sharing your story. I would love to speak to you as I have similar experiences.

Thanks for sharing

Thank you for sharing, I tell if anyone asks. They usually ask my partner and she tells them as my official spokesperson. I am not looking for pity. Others with PD notice and ask me. Non PDs don't ask. One friend asked my partner if I was day drinking. lol

Kim thanks for all your great videos. I was started on a C/L trail without a definitive diagnosis two weeks ago and it seems to be working with my symptoms. One of my most annoying and prominent symptoms is facial masking, and you've mentioned that you have it and it's aparent when I see you speaking in your videos. I've read a lot of books about Parkinson's and they mention the fact that oftentimes the patient is not aware that their face doesn't have expression, but family and close friends notice first. My experience has been a bit different. I can literally feel my face getting stiff from my upper lip all the way around my eyes and my eyebrows. It's tight almost like it's swollen, but it's not swollen. My upper lip hardly moves at all and my mouth doesn't open as far. I'm wondering if this has been a your experience and if you actually feel the facial masking coming on and then being relieved after you take C/L? Again thanks for your videos and insight you've been very helpful.

Wow nice video, I also tried #DrSusanOduwa herbal product, I must say is a game changer ❤️ and I am totally free from PD

Thank you for sharing your video. Very encouraging and helpful. Looking forward to viewing more.

I enjoyed this video. I was diagnosed about the same time as you and have learned so much about PD. I also have R.A., last year I had a knee replacement then 8 days later a heart attack, 2020 was a lousy year. The depression and anxiety through me for a loop this past summer along with several UTI’s. With the help of meds and doctors I am feeling much better. I am scheduled to begin the Big and Loud and am excited to do so. Thank you for your u tube channel and look forward to more chats.

Thanks Kin, I hpe you have a great Memorial Day weekend!

Great job Kim. Your videos give me a window into your fight. Love ya!

Thanks Kim for being so open and honest and giving me the ability to gain a small understanding of what you are going through. Please keep them coming!

Great video Kim..Love you!

Hey Kim I've been waiting for another video update on your prognosis and progression with Parkinson's, your videos are very informative, thanks so much!

You mentioned in an earlier video that you have some facial masking, It's more obvious in this particular video. I think I do too and I just have a question for you about it? Does it feel like your face from your upper lip up is swollen stiff and numb almost like you had novocaine? And yet it is not swollen? That's pretty much how I feel. I'm not diagnosed yet but I think I have it. Other symptoms as well.

I'm not an expert on medications but I do recommend you read the book, "The New Parkinson's Disease Treatment Book: Partnering with Your Doctor To Get the Most from Your Medications" by J. Eric Ahlskog PhD MD He goes into great detail on medications and he definitively says that carbidopa levodopa can definitely help you sleep, If you have Parkinson's, and he explains exactly why that is.

Thanks Kim for all your videos they are very helpful. I'm not diagnosed but having mild symptoms and my mother had PD. The info on accomodations and disclosure is really helpful. If it proves I have PD and symptoms progress I would disclose early on. I'm a nurse in the ICU so my coworkers being doctors and nurses would probably figure it out anyway. But they would also have a better understanding and acceptance, I think? My biggest concern is if my executive functioning declines, then I would be looking at disability. I had Covid in December and have had brain fog and forgetfulness that I attributed to post covid syndrome but now I'm wondering if it could be PD because of other mild symptoms I'm having. Anyway, thanks for the videos and sharing your journey.

Another great video Kim! Keep being you!

thank you Kim take care be happy be safe have a great day

Thank you for your inspiring words, I’m certain this is helping many people who are struggling with all sorts of diagnoses.

We appreciate your videos. We request you educate us on auto insurance and driving issues with parkinson's.

thanks Kim you have a great day

thank you have a nice day Kim be safe

Rock Voices..yes!! You have rocked so many solos!

As someone in the mental health field, it horrifies me to hear about these awful providers. I'm just so glad you were able to find people who work well for you. Thanks so much for sharing and for encouraging people to leave providers who aren't a good fit (and who are billing unethically!) and find someone else!