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Cure RTD Foundation
เข้าร่วมเมื่อ 4 ม.ค. 2013
วีดีโอ
Brooklyn's Story - Riboflavin Transporter Deficiency Type 2
มุมมอง 1655 ปีที่แล้ว
Brooklyn's Story - Riboflavin Transporter Deficiency Type 2
Paige's Story - Riboflavin Transporter Type 2
มุมมอง 1505 ปีที่แล้ว
Each person’s journey with Riboflavin Transporter Deficiency (RTD) is different. Please watch Paige Snedeker share her personal story about growing up and living with RTD type 2. Paige is deaf, legally blind, breathes with the assistances of a ventilator, cannot walk or use her hands. Paige is also an amazing artist, accomplished writer and public speaker and brings absolute joy to everyone tha...
Cure RTD Foundation
มุมมอง 525 ปีที่แล้ว
Please enjoy this short video from Cure RTD’s Science Director, Keith Massey, and his daughter Julia. The video provides a brief background on Riboflavin Transporter Deficiency and the Cure RTD Foundation. For the hearing impaired you can download the caption script at the following link: curertd.org/wp-cont…/uploads/…/11/Cure-RTD-Script.pdf
I came to have a story of riboflavin defecency for my nutrition class but I ended up on the verge of tears
One of my best friends has RTD. It wasn’t until she was about 20 until she got the real diagnosis. She has graduated college, gotten married, and works. Brooklyn has a bright future ahead of her!
She so cute