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My mom was diagnosed with it but I don’t have it according to this. Want to start rebounding because I have tiny bones and want to strengthen them before I get any older. You are supposed to check with your doctor before starting rebounding if you have back pain so I guess I will.

I felt sad for my sister she's working as a helper . And her boss as her to clean their rooms ,under the bed she can't use mop instead she need to carry the king mattress by herself while her boss watching her😢. And now she felt much pain.

Hello I had a VBT done around 2013 and ended up having to do spinal fusion 2023 , I haven’t had any issues just mobility is limited now. Went to Randy’s children’s hospital in San Diego.

I wish I was born a few decades later as I had a spinal fusion aged 11 in the 70’s and I’ve got no movement whatsoever and ridged. I also went onto have a badly tethered spinal cord and they didn’t diagnose me with this and Spina Bifida until I was in my 30’s. This is fantastic to hear tho for this generation 🙏🏼

I'm sad it seems the traditional route will be the only thing I can do

My son got his op at the start of lock down thanks to the doctors in Edinburgh he's great but if the doctors listen to Nicola sturgeon my son wouldn't be waking as she stopped all surgery but the surgeon said he was going to operate as john was at 105 curvage and had scillyosis aswell he struggle getting in and out of his car but its sad to see him like this but we're very grateful to our Edinburgh Doctors

0:38 This disturbs me about these doctors so much. He just told her to "watch and wait dOnt wOrRy" which is the most bullshit advice ever as so many scoliosis cases get worse. As SOON as you notice a curvature, be it 10, 20 or 30 degree curves physio needs to be done asap to at least try to stop it. (See Scroth or Clear method) Then a few years later she goes back to the surgeon coz her curve's gotten a lot worse and he banks big bucks for performing the surgery. 😒 Just thought I'd raise some awareness as I regret my surgery. 💔

If anyone here has scoliosis please please do physio like the Scroth method if mild or Clear method if severe FIRST. If not, consider surgeries like VBT and apifix which PRESERVE flexibility, never ever get a fusion unless you've tried EVERYTHING else. Never just "watch and wait" either. I was 13 when I got the surgery and now 10 years later my spine is degenerating above and below the fusion, aka adjacent segment disease I was not told about. I feel robbed. Your spine is built for MOVEMENT not to be fused. Unlike other procedures scoliosis fusions are currently NOT REVERSIBLE. Those surgeons will keep fusing until theyre no longer allowed to. The traditional old way is not always the best way for everyone.

Very helpful for my scoliosis surgery that I had 22 days back. Thankyou so much

Is there a way to fix this because I’m not getting surgery. Is there a way I can reverse it since my scoliosis isn’t even that bad but I need to prevent or cure it without surgery

The bra wouldn’t stay up. Then it all made sense.

This is actually horrible to wear maybe it will help but its hell

I have some of these X-rays didn’t super anything tho so idk

I hope there is someone or charity would help me to afford this kind of surgery ,.im having a severe dextrocoliosis for 14 yrs.. And i can't afford the cost of surgery ..and the high quality of operation..

Music so loud could barely hear her voice.

I'm very happy for these girls. I had the same great results after fusion for many years. Fast forward now it's 29 years later and the consequences of fusion are becoming more and more apparent and painfull. I wish more research was done into the long term effects of fusion. Initial correction comes with long term costs.

I was shocked toy spine on x-ray i always thought i hurt for working to hard 😢

Great thought!!!

This video is so relatable and helped me realize that I have scoliosis ❤❤

I'm just 16 and yesterday's I got to know abt my scoliosis 🤧 Actually I was having x-ray of my hand (my hand x-ray report was all ok)🤧but in that x-ray part i can completely see my back bone and there my doctor said that you should sleep without pillow 🤧🤧😭 on a flat matress 😭😭 damn I'm scared well it's not noticably until and unless anyone stares at my stomach for a moment though rn I'm not taking it seriously but in future idk what will happen 😭😭😭

Hi there, I’m a female with scheuermann’s that apparently is not severe enough for surgery, but I am in daily pain. Interestingly (as an aside) I went to a chiropractor recently (actually in relation to my hip not the kyphosis) and he said (and he’s not the first - I have heard this MANY times) that the scheuermann’s shouldn’t be giving me any pain. And he didn’t seem to be saying this in relation to how it presents for me. He was saying this as a general rule! Because when he said that I said I’m in a scheuermann’s group and everyone’s in pain and he responded that he has friends with scheuermann’s and they don’t have any pain 🤔… …So it got me thinking (because I did meet a guy with a worse curve than me who said he doesn’t have any pain) and it makes me wonder about physiological gender differences. One thing I have noticed (but I cannot sustain for long because it restricts my breathing) is that if I basically strap or tape up my boobs then my back and neck are less painful. I am a pretty average size (all over, including chest) so I can’t imagine boobs any bigger than mine. But also I’m 49 so I suspect the loss of collagen and muscle loss during perimenopause would also be playing a part. Besides that, women have less muscle mass ESPECIALLY in the upper body. For this reason I think there should be considerations made for this when considering quality of life. I’m really not convinced that the size of the curve is necessarily what governs pain. But then I don’t think medical professionals care that much about pain as it seems to only be certain conditions that are taken seriously and level of pain (and thus quality of life) don’t seem to be a big factor influencing this. (I’m from UK by the way so I am speaking from my experience with our broken system)

I’m finding it hard finding a specialist for VBT for my son who is 22. We are based in Philadelphia pa.

How painful was it? How long was the pain?

I have got my surgery for this now i can do it this exercise please tell me

I'm a Nigerian. I will love to go for my scoliosis surgery but no money. But please if you help me. I will be glad.😢😢😢😢

Thank you for sharing your testimony.

Yep, very primitive, same rods and same technology for the last 100 years ! They couldn't come with some new shape rods, new material, new thechnik to avoid fussion in adults. Shame on the today scoliosis doctors !!!!

Great educational video! May I ask whether I can use it in my primary school as an educational material?

People with scoliosis: Finally, a worthy opponent. Our battle will be legendary!

Thank you

can this be used for scheuermanns kyphosis?

I really have a lot of compassion for people with scoliosis as I have it myself and do to bc childrens in Vancouver!

For the record, i had 5 mi. To cram 30 years of life onto it

Damn i was anxious and nervous on this

it would be best if you can post a study on flexibility and motion between VBT and PSF when it involves the lumbar getting fused or tethered to at least L2/L3 and below. Because as it stands right now, there is barely any benefit to the motion being preserved under the VBT procedure compared to PSF for thoracic only curves with the study conducted in this webinar. The risks of undergoing VBT like reoperation at a later date with the added complications and the curve not being corrected as well is not worth it just to benefit from the unsubstantial amount of extra motion and flexibility. The only benefit I can think of is the theory that the VBT would preserve the vertebral segments both below and above the instrumented area from wearing the discs out better than the fusion can in the long run. A study worth noting for your channel someday. Another study comparing the discomfort and back pain levels of VBT to PSF for both a young to middle age adult cohort would be great as well tackling the complications that arise with VBT in a 10-20 yr follow up, like just how many patients did preserve their corrections and/or transitioned to fusion.

This webinar was extremely informative. As a family, we are heading for our 1 year follow-up this morning. Learning more about VBT and PSF has allowed us to offer our friends and colleagues who are going through this with their own children another resource to calm nerves in such a time sensitive procedure. What an amazing ensemble of superheroes in the field which includes patients who shared their stories. Thank you. Thank you and more thank yous.

👍

Well damn I have all 7…guess I’m screwed 😂

Can people get the surgery at any age ?

Yes Muscles adjusting to spinal alignment.. WHAT ABOUT THE LIGAMENTS? Please talk about the ligaments! Are those release in surgery?

AIS diagnosis at 16, spinal surgery (Harrington Rod) done when I was 22. I am now 62. Everything has held up well!

I’m 12 and am wearing a brace for a 42 degree Cobb angle! This really helps knowing that others are struggling with this too!

I had sergury in 2011. I turned 15 at the hospital :( Im now 29 and I began feeling extremely severe pain with my last baby (#4) during the last trimester. The pain was unbearable, up to the point I would tell my husband to help me up. Now, shes 15 months and Im still in such pain on and off. I can't stand for more than 30 min, bending over repeatedly to pick up toys, laundry etc is bad. I was prescribed Diclofenac Sodium Tropical Gel for the back pain plus ibuprofen

Can you please send a video on how to sit and sleep

I had to have a spinal fusion. Back in like 2014. Essentially my entire spine. I had what they call an “S” curve. My arm looked like it had fallen out of the socket. My parents finally took notice. After being in pain for years. It was my first week of high school too… It rapidly got worse. Surgery was like 3 months later. It was like 90 something, 70 som degree curves. Cannot remember the exact numbers now… But tbh this ruined my life. I missed a year of school. All my friends moved on. Then I dropped out one semester after returning. They took me off my pain meds. I could not focus. The heavy books, hard chairs, I was in agony. They kept saying I was too young to be in so much pain. I was doing great, made new friends, reconnected with old ones. But then it was all take from me again. Next comes the anxiety, depression, agoraphobia. Now I’m a recovering addict. I figured out opiates didn’t just numb physical pain, but mental as well. Something I never even considered doing, until years into losing everything twice. Sometimes I wonder what my life would have been like, if they listened. Didn’t force me off my hydrocodone, bc of my age. I use to be happy. I am glad so many have good outcomes now. And the technology has improved. I met someone who had this done in the 70s. It looked quite miserable… But all the positive stories, maybe some people need to hear a bad one. But I promise you will be okay, even if it’s slow, comes later. ❤

Music name pleas

My daughter braced, awaiting surgery; myself, braced back in the day and now about to get surgery too. It’s really tough having both of us go through this at the same time.

Is anyone bothered by pain or discomfort from the screws and rods?

Thanks! ❤

The tethering surgery can it be done on kids with a scoliosis and kyphosis curve of 69 each. 😢