วีดีโอ

for most doctors, a patient cured is no longer a customer

so why do we need breathing devices

i think took the als ice bucket challenge 🪣 with 1gal of purified water

Lions Mane mushroom is a good supplement to protect and heal nerves

Let's find THE cure for ALS! Let's find THAT CURE, that will STOP ALS in it's tracks! There is a cure out there, and now it's just up to the US to find it!That one day, no child will have to hear, "Daddy is going to pass away because of this." That way, no child will have to watch their parent deteriorate from this HORRIBLE disease! Let's find that cure that will change lives! We've found a Cure for diseases like Spinal Muscular Atrophy! NOW, Let's stop ALS!

My tricep started twitching randomly a few days ago, googled it and here I am 😞

I just cannot get this disease out of my head. Have been having twitching, tight and almost feeling cramped but nothing that does not allow me to work my physical job as a mechanic. I have done an emg, mri and countless blood tests. I have had more pain than normal in my muscles, back and body. A lot of numbness/tingling. Recently see my tongue is starting to spasm in one spot and now my tongue feels kinda swollen or tingly/numb and under my mouth feels swollen. Hard to explain. I’m sure I have arthritis RA runs in my immediate family. Have been dealing with this shit for month now but still have strength to knock out exercises, walk, bend, pick up things etc. it’s just so damn insane and I’m tired of dealing with whatever the hell is going on. Starting to take some magnesium, b12, to see if my issues will lessen or subside a little bit.

this my is my1st EMG results but after my primary care doctor did a clinical exam she found I had generalized weakness in both legs , no reflex in my deep tendon in my right arm and no more arm swing in my right arm. so she ordered and MRI of my spine and brain....the brain MRI shows no stroke damage I had a positive finger to nose test shaking while hand was away from my nose. Cant do Romberg stance or tandem stance or tandem walk. I take deep breaths through the day I also have sleep apnea....I have an EMG coming up again for all 4 limbs.....I also have hyperflexia ....over exagerated reflex on my left side of my body....here were my 1st EMG results Chronic bilateral lumbosacral radiculopathy findings: @ L4 = none on left; very mild on right @ L5 = mild category on both sides @ S1 = very mild on left; none on right. my right arm is weak and I cant lift a gallon of milk with it without aching pain and weakness it is the same arm that has no natural arm swing. My left side of the body is more affected than the right when it comes to arm and hand shaking. I get lateral tremors in my fingers that started in my left hand little over two years ago and moved to my right hand....both my arms shake involuntarily throughout the day...from prior Spine MRI's I had with a former primary she noticed there was no compression in my spine...I do have multilevel degenerative disc disease but next time I get my MRI of the spine I want them to investigate my Anterior Horn in the spine and see if I am having issues with motor neuron disease...If anyone has ALS and has been through something simular to this please respond thank you.

I know several people who had ALS, including my father, and all of them lived on the coast line/archipelago

How do you recline the seat back

Yeah right...we must be positive because the quality of life is " pretty good"

Good on you Doc! I totally agree with this type of approach.

What about the relation to hormones? I’ve seen a fair bit of evidence about this

My father have symptoms like bulbar onset als doctor do multiple test like MRI ,emg ,blood test but all the report are clear but still doctor prescribed relutik medicine ,i am very worry plz tell me what we shall do because his symptom increase day by day

Am a Ugandan,, do you have any nutrologish you know in Uganda here to help us?!

Am a Ugandan,, do you have any nutrologish you know in Uganda here to help us?!

Am a Ugandan,, do you have any nutrologish you know in Uganda here to help us?!

Am a Ugandan,, do you have any nutrologish you know in Uganda here to have us ?!

How can we access treatment from Uganda here?!

Diagnosed with Severe AS, now having signs of ALS

I disagree. They are losing weight because they don't have muscle. When you don't have muscle, you lose pounds.

I have split hand index. Can you help me?

This neurologist got swag styles

I'm 29, suffering from ALS. It's a cruel cruel disease. Life has been very challenging as of late. Only people who are suffering know it's pain. I don't know what we did deserve this. I cannot even afford a wheelchair to go anywhere.

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Wish all ALS doctors were as open minded and practical and Dr Bedlack.

I always say that everyone has their own version of ALS. My mother had sporadic bulbar onset and had it for almost two years. She passed before my eyes on Dec 27, 2011. 😢

dude looks like he's wearing a disguise

For the last 7 years, I've been experiencing health anxiety about different diseases. Recently, I feel like I'm having trouble speaking, but no one around me, including my wife, notices anything different. I'm convinced I have ALS and have started showing symptoms. Seven months ago, I thought I had a brain tumor and got an MRI, which was normal. I keep searching online about ALS and now genuinely feel I have it. I've had similar anxieties about other diseases over the years and have seen many doctors with normal reports. I'm 40 years old and from India. What should I do? Please help me.

Excellent video🥰

nice video🥰🥰🥰

My mom suffered from cidp and dementia. I am so angry at myself for all the times I lost my temper. I feel nothing but sadness and regret. I was proud I was a caregiver but I’m so disappointed in myself.

Hi, I'm in Australia and have recently watched an advert for clothing that uses magnets in place of buttons for those who are challenged doing buttons ( shirts, blouses ).

An A$$ social worker telling me how to die...what a joke and a horses a$$. When you get hit with this diagnosis come back then and I'll still think you're a dumb@$$. You can ask me I can tell you if you like.

Consume essential fatty acids. I think Medical over-complicates.

We do try to be funny, joke around, be in the moment and to find laughter where we can get it. We also change things up, so it doesn't get repetitive especially in physical therapy. Used it in hubby's chemo treatments from his colon cancer. Once we both had our big cry and head shaved, we decided we are going to conquer this come hell or high water. It worked. Cancer free since 2012.

How will that work if someone has stage 3-4 heart failure and defib. Implant and told to lose 30-40 lbs to prevent more strain on the heart? My hubby, who has the IBM VCP MUTATION neuromuscular disease has been losing muscle bulk for a while now and overall weight and not trying to lose weight. Blood counts and other tests or clinical are good besides the long time creatinine always being low.

Im having a challenging time feeding my father, this was helpful, thanks

Dr. Bedlack is a wonderful and compassionate doctor. He diagnosed my mother with ALS after many misdiagnosis from other hospitals/doctors. He gave her 6 months to live and he was spot on correct. He wears bright suits to bring a smile to patients, because the disease is fatal and will take everything from you. Don’t believe BS about diets, covid shots, vitamins, the disease will kill you. A ventilator is the only thing that’s will help you live longer. Truth hurts, I lived it.

How do l tighten up my foot plates..my left one is loose on a vision ultra power chair?

I have insomnia and don’t sleep more than 3 hours a night. I need to figure out how to charge it the rest of the time.

Please help: I’ve been taking spirulina supplements for a while which is considered a blue-green algae and just read into it that it may contain BMAA… I’m scared it’s gonna cause nerve diseases. I had a scare because I started to get muscle twitches everywhere and nerve pains and unexplained nerve issues. I went to the hospital a few times and did tests and they said I don’t have to worry about ALS or MS but this started happening after I started taking spirulina supplements which I have now stopped… will this eventually build up and lead to a neurodegenerative even after I stop taking it or only a high toxicity will cause conditions like ALS? Please help!

This made my Dad’s liver enzymes go way out of whack, and he had to stop the medication 😢

I have been diagnosed with cervical spondiltic myelopathy. Next week I am scheduled for an EMG with nerve conduction to rule out MND.I have episodes of extreme weakness and complete loss of Rom.I cannot use my hands or lift my arms. As soon as I get prescribed steroids I improved.This has been an ongoing pattern with me since August of 2023.The neurologist giving me the EMG said she would not prescribe steroids.I just know that the Prednisone works for what I'm diagnosed y at this time.CSM is an ALS mimic. Steroids are cheap guess there's not enough money to be made have.

My husband has a quantum edge power wheelchair. We can’t afford a conversion van. I am currently driving a 2017 Dodge grand caravan. Could you suggest any trailers that might work to transport his wheelchair behind the car? Thanks

Thank you for making this.

I have als. My symptoms started 1 year ago. I've had 4 bad falls that resulted in traumatic brain injuries. The falls caused my symptoms to go from initial temporary transitory pain in my hands, and feet. After the first fall, my right hand and arm experienced muscle atrophy, and an extreme case of foot drop in the right leg. My dr sent me to get an mri to test for stroke. With bo signs of a stroke my dr sent me to see an orthopedic surgeon. After being misdiagnosed and referred to numerous doctors, not one dr could accurately diagnose my condition. The last orthopedic surgeon diagnosed cervical stenosis with myleopathy and radicuopathy at c5/c6. He referred me to standford to see the orthopedic surgeon and a dr for als/ms. The orthopedic surgeon agreed with the cervical stenosis diagnosis. Before i saw that dr, i had another bad fall that resulted in a fracture in my right hand which resulted in total loss of use and movement in the right hand, an even worse case of drop foot in the right foot, muscle atrophy in the left hand, and a beginning case of foot drop in the left foot. I had surgery to fix the problems with my c5/c6 vertebrae. Immediately the numbness in my right hand and foot subsided. Last week i returned to see the als dr and after blood tests and nerve conduction and emg tests the dr diagnosed me with als. Can the falls with traumatic brain injuries hasten the onset of symptoms? Can the prevention of further traumatic brain injuries slow the progression of symptoms?

What a new treatment please tell me als mnd IAM young girl moon from Quetta Pakistan

Thank you for the information.

Oh my word. Appalling way to hear about the diagnosis. Appalling.