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My birthday mother died of CJD in Australia. We are now waiting on test results to see what type. Fingers crossed 🤞

Lee Michael Johnson Scott Rodriguez Christopher

*CRISP, CRITICAL ANALYSIS OF THE CJD CONUNDRUM* *CLEARLY DEFINED* *CONFIDENTLY DELIVERED*

Don't know if the skin tissues of sCJD patients before their disease onset are still transmissible...? Then we even don't have an alert for precautions... Hopefully the drug against prion may come out soon.

Just had to say goodbye to my beloved uncle & friend last week. He was diagnosed with CJD in January and it took him quickly in February. Please, please, please help find a cure.

Just lost my uncle to this 3 days ago. Please find a cure!!!🙏🏻🙏🏻🙏🏻

My uncle is quickly succumbing to CJD since New Years. This needs to be stopped!!!!

I'm so tired of the stupid doctors that they can't figure a diagnosis out it's getting so ridiculous they should think of the worst thing first and then go from there not the least thing first ...stupid they really haven't backward every doctor in the world they should do an MRI first not last

yeahhhh dude

Why must this guy sound so unimpressed when answering the questions- 'yeah sure' all the time.

Olá, minha esposa foi diagnosticada com doença degenerativa GERSTMANN- Straussler- Schenker GSS. Ficamos sempre atentos a informações e mesmo não entendendo nada do que foi dito cremos primeiro em DEUS e depois nos médicos como vcs pra acharem um tratamento e até a cura .🙏🏻🙏🏻🙏🏻.

Thank you. This is my family story right now. Good historical break down. I have been tracking this since the mad cow scare. Blessings

I wish they have in Philippines

I wish they have in Philippines

I wish they have in Philippines

I wish they have in Philippines

Hope more research is done for prion disease so can we have effective treatment against them.

i suspect you have cognitive CJD HOW you ask: A: at 8:53 of all the colours on the colour chart you had to pick only green, grey and blue, = hard to distinguish. how about yellow, red, brown, blue, green, white, grey, that's 7 colours to choose from.

Sonya and Eric are the soldiers of humanity. Keep up the outstanding work guys. Love from India!

Very interesting , thank you! Hard to find a good video on this

An excellent presentation and I do hope that more breakthroughs can be made Being someone who lost a family member to CJD I am encouraged that you are raising awareness and pushing ahead with research Thank you for sharing

78yr old with a degree in microbiolgy. Worked at Missouri state veterinary lab. Back in the 70s. Found this presentation very informative. Here in Idaho, we have serious CWD in game animals.

This dease comes from eating the brains of dead people, cannibalism. You can call it what ever you want. You can tell who eats brains because it's fatal and they get retarded

Incredible to you two, such an amazing pursuit. And quite an incredible accomplishment without a (presumed) science background. Hopefully you’re pursuing your results with non-animal based research. Godspeed to relevant research and a cure for Prion Disease

i don’t quite get. it a disease not cause by prion protein then should not be called prion disease, that is clear. then what are those variants of prion he mentioned ? does he mean there are various of prion proteins that cause variety of brain decay disease? what r the variant of those prion proteins that can cause brain decay? as we know not all prion proteins cause problems, only the mutated one.

My ex mother in law was recently diagnosed with this. She went "back home" this summer in Kosovo, and fell ill very quickly & literally has been given 2 weeks to live. She was fine in May, no symptoms at all, but in July while overseas she began exhibiting symptoms of dementia & clumsiness, and now its October and shes been given approximately 2 weeks to live. This came on quickly & has rapidly progressed all within 3-4 months. I suspect hers was brought on by eating contaminated beef while on Kosovo (they are Muslim & eat mostly beef) ...

amazing explanation. thank you so much

I know this video is one yrold but if Matt Collins from Akron ohio could reach out to me I would be grateful. I am in ohio and lost my mother 4 yrs ago suddenly to CJD. I would love to get involved in hopes to help my grieving process. Thanks so much!

My husband had this disease he started in March 2020 first he was falling over for no reason I tried to see a doctor but it was lockdown so only online messages. After 2 weeks things were the same only no he was unable to remember simple things still falling over. In April I took him to the hospital they kept him in for tests this went on for 4 weeks in all this time we couldnt see him. He was transferred to a neuological hospital by this time he was into the 5th week and they told us is was CJD and he only had a few days left. We were devistated he was barely concious so we couldnt talk to him, he passed away few hours later May 2020 no time for goodbye. This is a horrible disease for anyone to go through.

It is a brave new world.

Love this guy !

Thanks for all the efforts you do at CJD foundation to find the cure for this disease, and thank you for supporting CJD research!

Thank you Mr. Caughey for making time yesterday. I'm greatly appreciative.

you guys are inspirational for my generation. I hope you get more recognition going forward and thank you for your hard work.

1:20

It’s interesting that it says if given in the later stages, the progression isn’t effected. I believe it is similar in other neurodegenerative conditions such as SSPE and ALS.

How many autopsies include testing for a prion? CJD?

CDC needs to update their CJD number of cases page

If my MRI and EEG were fine can I have this disease? I am 33 yo , male and I have some unusual symthoms that haven't been diagnosed yet. Intense sleepiness and mental exaustion but I can't sleep and I previously slept for 7-8 hours, involuntary hand muscle spasms on the left, brain fog , high pulse 130 bpms ( cardiologist says I'm fine) and nausea sometimes, tingling near my spinal cord and red rashes that don't ich that appear the next day after an episode wich doctors say it's hives. It happends all in a "crisis" that I'm having until I sleep for 12 hours or more continously once or several days in a row in a month. I feel like I'm dying of something but doctors say it's psychological and probably depression and anxiety. This has gone on for almost 3 years now

God bless her. , this disease is almost impossible to tackle, but she's really thinking in some ways outside the box. Advanced Combination therapies may well be the future in modulating and treating or maybe even stopping such a horrible bunch of diseases

Can you please fix the typo in the video title of the Confronting CJD video?

You guys are going to do it 👍👍👍

My pain and sorrow is gone thank you #Druromi on TH-cam for being responsible through the national herbal medicine you gave to me..

My pain and sorrow is gone thank you #Druromi on TH-cam for being responsible through the national herbal medicine you gave to me..

My pain and sorrow is gone thank you #Druromi on TH-cam for being responsible through the national herbal medicine you gave to me..

My pain and sorrow is gone thank you #Druromi on TH-cam for being responsible through the national herbal medicine you gave to me..

My pain and sorrow is gone thank you #Druromi on TH-cam for being responsible through the national herbal medicine you gave to me.

My pain and sorrow is gone thank you #Druromi on TH-cam for being responsible through the national herbal medicine you gave to me.

My pain and sorrow is gone thank you #Druromi on TH-cam for being responsible through the national herbal medicine you gave to me

My pain and sorrow is gone thank you #Druromi on TH-cam for being responsible through the national herbal medicine you gave to me.