วีดีโอ

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I love this forum. As a person who battles to find diagnosis from 2012 after my liver op. I struggle with digestive disorders. Always in pain, exhausted in cramps and now brain fog. At times I find doctors unhelpful bcos they focus only on the symptoms. Perhaps next time invite chronic sick people to share about their experiences and frustrations. But all in all, good forum.

Thank u so much for sharing.

When I got my rare auto immune disease Pernicious anemia. Was shocking at first because I didn’t think I had the symptoms but I was glad and relieved to get a diagnosis because took so long to find out what was causing my dizziness and irregular periods because made sense so this why education and testing is important on rare diseases or rare illnesses even if it does happen often

Buenos dias. Gracias persibo que están concientizando y dandoba conocer las enfermedades raras o huerfanas. Gracias. Es posible el video en español?. Mi hija ha sido diagnisticada con ELA. Gracias.

Great video. If only my doctor would watch it and learn, but I guess that's just a dream.

This is a helpful video that gives a great overview of rare diseases! Thank you for the great animation and subtitles!

Recognition and visibility are so important, thank you for your work on this!

si può avere in italiano?

This is a fantastic tool to immerse yourself in the world of PLWRD. I am Mexican and I am patient 01 undergoing augmentation treatment in this country. After being diagnosed with my rare disease 5 years ago. The challenge was and to date is to get my treatment in the country on time and to have it provided by the government. Probably and I repeat probably, in a country predominantly run by men in public office, it might have been different if I were a man. So I might have been able to start treatment early in my deficiency and stop the damage to my lungs and slow the progression of the disease. Maybe...

I've been seeing doctors for five years, and everyone has been transferred to another department and I'm still like this. Do I have a rare disease? How can I know that I have a disease that doctors haven't known yet, with symptoms that reach sensations?suffocation or death

Ah! Z2u reputation! yes,

Alas! Is z2u legal? uh-huh,

Great work. Congratulations to everyone involved. We are indeed moving forward and we need a change of mindset at all level. The willingness is there

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I have a son with rear disease called Hyperprolinemia

Me ha encantafo seguirle.

It is a beautiful video, explained very well. Congratulations to the English voice and the designers of this animation.

Some segments in the video are stamped not adjacent to each other

Keep us informed,rare disease information is rare in every sector of life,i,as a parent of a child with spina bifida feel that you are now on truck to save very many lives

You are doing well, more grease

Great