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Immune Deficiency Foundation
เข้าร่วมเมื่อ 19 ส.ค. 2009
The Immune Deficiency Foundation (IDF) community is a creative and committed group of individuals who are busy reaching out to help spread awareness and education about primary immunodeficiency diseases (PI). Tune in to see what is happening.
Integrative medicine and pain management - Living well with PI
Dr. Maeve O'Connor discusses integrative pain management approaches for primary immunodeficiency patients, including nutrition, stress management, and more.
See a PDF of this presentation: primaryimmune.org/sites/default/files/IDF%20MEO%20AUG%202024.pdf
Presented with support from Takeda, CSL Behring, Grifols, Accredo, ADMA Biologics, Amgen, Chiesi, Kedrion Biopharma, Pharming, and Sumitomo Pharma.
See a PDF of this presentation: primaryimmune.org/sites/default/files/IDF%20MEO%20AUG%202024.pdf
Presented with support from Takeda, CSL Behring, Grifols, Accredo, ADMA Biologics, Amgen, Chiesi, Kedrion Biopharma, Pharming, and Sumitomo Pharma.
มุมมอง: 141
วีดีโอ
Bold Conversations: Inclusion in practice at the 2024 PI Conference
มุมมอง 76วันที่ผ่านมา
Transcript: primaryimmune.org/sites/default/fi…ranscription.pdf Immune Deficiency Foundation staff members Alissa Creamer and Megan Messick join Dr. Nicole to discuss the inclusions efforts that went into planning the blockbuster 2024 PI conference. Dr. Nicole's conference session (The Elephant in the Exam Room): th-cam.com/video/kn7gM7hsGA8/w-d-xo.html
Hyper IgM overview: 2024 PI Conference
มุมมอง 13414 วันที่ผ่านมา
Gain an understanding of symptoms, criteria for diagnosis and available treatment options for Hyper IgM. Also learn tips and resources for managing a Hyper IgM diagnosis.
PI & aging: 2024 PI Conference
มุมมอง 433หลายเดือนก่อน
Learn about the unique challenges seniors face navigating a complicated diagnosis like primary immunodeficiency, and tips to overcome them. Increased complications of autoimmunity, G.I., cancer, chronic lung disease compounded by immunosenescence, concurrent comorbid diseases, frailty, isolation, and dealing with our complex health system, make it imperative that we understand and meet the need...
Hyper IgM syndrome: T cell markers as a guide to treatment & severity: 2024 PI Conference
มุมมอง 130หลายเดือนก่อน
Learn about Hyper IgM Syndrome and its clinical manifestations and about the ongoing study investigating the role of T cell markers in Hyper IgM syndrome. Also learn about the correlation between T cell markers and clinical severity and the potential complications of T cell markers for developing new and improved treatments for Hyper IgM syndrome.
Translating microbiology of infections into genetics of immunology: 2024 PI Conference
มุมมอง 82หลายเดือนก่อน
Learn about recurrent infections and how the microbiology of infections can guide immunological and genetic investigations. Explore ways to stay informed or get involved in upcoming research or studies.
Dermatology issues in the PI patient: 2024 PI Conference
มุมมอง 145หลายเดือนก่อน
This session will outline the relationship between PI and skin disorders. You will also receive tips, advice, and treatment options for the management of fungal infections or dermatological issues.
Gene editing for X-linked agammaglobulinemia (XLA): 2024 PI Conference
มุมมอง 265หลายเดือนก่อน
Learn basic concepts of gene editing and how it has been used to treat certain types of PI and the potential of treating X-Linked Agammaglobulinemia (XLA) using this method. Gain an understanding of what this study aims to accomplish and how it will inform potential clinical trials in the future.
The role of AI in the future of PI: 2024 PI Conference
มุมมอง 58หลายเดือนก่อน
Learn more about the potential benefits of utilizing artificial intelligence (AI) in healthcare as well as the risks and shortcomings of using AI in a medical setting. This session will also provide an overview of how AI is being used in immunology to educate the next generation of clinicians, improve patient outcomes, and shorten the time to diagnosis.
Meet the researchers: Clinical trials update: 2024 PI Conference
มุมมอง 78หลายเดือนก่อน
Learn more about ongoing clinical trials geared towards the PI community from a panel of primary investigators. Learn and understand the purpose and goals of each study and how they aim to contribute to better date and patient outcomes and the potential to improve our understanding of clinical presentations of PI and support our mission to shorten the average time to diagnosis.
Meet the stars of Compromised: Life Without Immunity
มุมมอง 453หลายเดือนก่อน
Meet the stars of Compromised: Life Without Immunity
Legislative initiatives breakfast: 2024 PI Conference
มุมมอง 34หลายเดือนก่อน
Learn about IDF’s 2024 legislative priorities and how you can engage with your representatives to move our agenda forward. Advocacy efforts include working toward the passage of legislation to ensure PI patients in need of Ig therapy have access to skilled nursing facilities, a federal ban on copay accumulators in insurance plans, and protecting federal funding for NIH research on PIs and CDC-s...
Severe combined immunodeficiency (SCID) overview: 2024 PI Conference
มุมมอง 118หลายเดือนก่อน
Gain an understanding of symptoms, criteria for diagnosis and available treatment options for Severe Combined Immune Deficiency (SCID). Also learn tips and resources for managing a SCID diagnosis.
Opening session: 2024 PI Conference
มุมมอง 254หลายเดือนก่อน
Begin the conference with everything you need to know about the next two days. This session will give you all the tips and tricks needed to make the most of your conference experience! To conclude the opening session, we will be awarding the Mary Rath Emerging Leader award and the Plasma Hero award.
Gene therapy: 2024 PI Conference
มุมมอง 101หลายเดือนก่อน
Break down the process of gene therapy, including how to access it, the overall procedure, and potential complications of undergoing this type of treatment. Also, learn which diagnoses are currently able to access gene therapy and learn about conditions that are being explored for this treatment method.
The elephant in the exam room: what your doctors wish you knew: 2024 PI Conference
มุมมอง 106หลายเดือนก่อน
The elephant in the exam room: what your doctors wish you knew: 2024 PI Conference
PI & respiratory health: 2024 PI Conference
มุมมอง 64หลายเดือนก่อน
PI & respiratory health: 2024 PI Conference
Common variable immune deficiency (CVID): Conversation with an expert: 2024 PI Conference
มุมมอง 454หลายเดือนก่อน
Common variable immune deficiency (CVID): Conversation with an expert: 2024 PI Conference
Immune to limits: Thriving in academics with PI: 2024 PI Conference
มุมมอง 22หลายเดือนก่อน
Immune to limits: Thriving in academics with PI: 2024 PI Conference
Parents of children with SCID, CID, and complex PI: 2024 PI Conference
มุมมอง 28หลายเดือนก่อน
Parents of children with SCID, CID, and complex PI: 2024 PI Conference
Emerging diagnostics & therapies for chronic granulomatous disease (CGD): 2024 PI Conference
มุมมอง 64หลายเดือนก่อน
Emerging diagnostics & therapies for chronic granulomatous disease (CGD): 2024 PI Conference
Managing food allergies with PI: 2024 PI Conference
มุมมอง 42หลายเดือนก่อน
Managing food allergies with PI: 2024 PI Conference
The future is now: preparing for transition to adult care: 2024 PI Conference
มุมมอง 17หลายเดือนก่อน
The future is now: preparing for transition to adult care: 2024 PI Conference
Emerging immunotherapies for PI: 2024 PI Conference
มุมมอง 46หลายเดือนก่อน
Emerging immunotherapies for PI: 2024 PI Conference
Communicating your diagnosis: Your care team & beyond: 2024 PI Conference
มุมมอง 61หลายเดือนก่อน
Communicating your diagnosis: Your care team & beyond: 2024 PI Conference
Love & lymphocytes: Finding love with a chronic condition
มุมมอง 29หลายเดือนก่อน
Love & lymphocytes: Finding love with a chronic condition
Activated PI3K delta syndrome (APDS) overview: 2024 PI Conference
มุมมอง 65หลายเดือนก่อน
Activated PI3K delta syndrome (APDS) overview: 2024 PI Conference
More than my PI: Defining my identity on my own terms: 2024 PI Conference
มุมมอง 23หลายเดือนก่อน
More than my PI: Defining my identity on my own terms: 2024 PI Conference
The zebra's guide to job hunting for young adults: 2024 PI Conference
มุมมอง 22หลายเดือนก่อน
The zebra's guide to job hunting for young adults: 2024 PI Conference