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In hindsight I’ve had C.M.T. from junior school, dad would get me and wrestle (me 1year older than my brother) I would fight like hell because of my tender left sole (drop foot and tender sole). The brother was no fun for dad , he didn’t react. I’ve had C.M.T. from junior school. Thanks.

May I know why did you choose this topic? I just want to know if its a personal interest. I have a mom with STPD so I would like to connect with people with real experience dealing with STPDs. Thanks for the content.

RIP Alex, such a smart guy! It was lovely to know you, Mom and Dad. Joshua's mom!

He gets to the topic at 3:40

Why are you talking about Notre dame?

❤

Hope you make more videos

Very helpful. Thanks buddy. Keep up the good work on your informative videos

Yesssssss

Cheers and how's it going? I also think if you were born with superior tastes, you would prefer Star Trek (not the new stuff, mind you, but especially TNG) over Star Wars! 😛There was the case of Geordi La Forge there and even though he was blind, his visor could allow him to see what others could not. That's a hypothetical involving new tech but I think it also applies metaphorically to all of us who, as a result of things we could not help, can see things that other people can't see. On the part about advocating for disabilities, that's certainly a blindspot of mine. But it doesn't just come from being able-bodied. I don't have any close friends or loved ones who are disabled although I see no reason why we couldn't be close friends so far if we had met except for your preference for Star Wars over Star Trek! Then I think I would advocate more for causes relating to disabilities as I would advocate for any cause causing any one of my good friends to suffer. What I have experienced among myself and loved ones is suicide (lost a best friend in high school who shot himself Kurt Cobain style), gout (I got diagnosed with it in my 30s as with most of the males in my ancestry), cancer (lost loved ones to it), among other things. So those are the causes I tend to prioritize although that's also a symptom of the nature of my life's experiences. I figure we all get dealt our hands. All we can do is relatively make the best of it. Doyle Brunson came to love 10-deuce in Poker and sometimes makes crazy bets with it. I always liked the suited jack-ten even though it's far from aces. I bet and raise with it like I have aces and that often makes people fold. People focused on absolutes, like making things "best", often forget how to make things better.

Much love much respect

I've read research that a whole food plant based diet can help with the condition

There are so many more types of CMT I have a rare type.

You are so articulate. Thank you for educating me.

Hi, how did you get diagnosed with cardiomyopathy? How did you get diagnosed with it if you were asymptotic?

Thank you for the video. I am a Occupational therapist assistant student at Arkansas State University in Jonesboro AR. I appreciate your friends allowing you to share their story to us. I have 4 learning disabilities plus ADHD. Growing up I was told I would not be more then a fast food employee or factory worker. I want to help other students with any type of disabilities to see that they to can be more then the world says. Thank you again for the video and I look forward to watching others you share.

There's over an 100 types apparently so i read on some medical site anyway

RIP brother ❤

R.I.P Alex and thankyou for caring for us all and fighting for our advocacy. ♿ 😥

thank you

I just recently found out that Mira does more than just guide dogs. I have EDS and my stability had been getting worse, so have been looking into what they offer. As much as if need be, I'll work with local trainers to train my own, Mira is just so much better recognized in Canada as a service animal training center. I know people who have self trained service dogs and had a friend who had a guide dog from Mira, and we always had less issues, sometimes even at the same places, with the Mira dog vs the self trained one. It is not a right now thing, but picking up things off the ground is starting to get more painful & I recently went from being able to work as a barista to needing to use mobility aids almost daily when I am out if the house that I use for preventing wobbling that causes injuries, getting up from sitting and for temporary bracing when I am waiting in line. So not a this will drastically benifit my life right now, but a I see where my situation seems to be heading and this would definitely benifit me should things progress the way they seem to be.

My 6 years child have type 2 Copy 4, I want to only what is the copy no?

Great video. I work in a genetics lab and this has been very helpful for my next interview :)

I find life in doing the right thing especially the decision of using Dr Madida medication in reversing my Parkinson disease that has kept me indoor for many years from the real world.

Natural root and herbs are blessing from God because i never believe my mum ALS can be cure and reverse totally with herbal medicine.God bless you very much Dr Ehimare on TH-cam for saving my mother's life....

nhl for the ps4

Wait, your Canadian? Reported. I hope you get taken off youtube.

Holy chungus!!!

There are also spontaneous mutation I have Cmt type 2b

Thanks alot for your effort

Alex, great documentary so well made. I also suffer with MD and was born in Dartmouth, NS and live in Montréal. I look forward to your next doc/vlog. Be well.

I look forward to viewing more videos in the future. There is so much to learn and understand. Great personal perspective.

Stay safe

Stay safe

My ideal date would be going out to a meal somewhere that has outside seating. Walking through a art gallery or museum is a great opportunity for conversation to get to know one another better.

No medical intervention is 100% safe. Your just blowing smoke dude.

Great On Speaking out about the topic of dating with a disability Nice to hear your intake about this matter

Thanks, Alex. I'm glad you shared your views on dating.

get like from Russia! I'm from subreddit disability

Great job on this topic. Found your video on Disabilities Subreddit. Glad I stopped in there today. Happy to be your newest twitter follower and youtube subscriber.

really love your intro

Thanks for the video my fellow Canadian. l live in Saskatoon SK. There are actually 7 or 8 different types/variants of CMT. l found this out a couple months ago on either the NORD or NINDS website (or maybe it was both) and l have the rarest form. What makes my type so rare is that l have Parkinson's like tremors on top of the muscle wasting, drop foot, shitty balance etc. l also have slurred speech which makes me talk like l'm a little bit drunk. My official diagnosis is actually called Roussy-Levy disease. l've been living with this shit since l was 12, l'll be 49 in a week. lf you want to chat or whatever, l'm willing to do so.

Thanks for sharing this fantastic information with your subscribers and for helping educate others on the importance of preparedness.

FMT as well.

Thanks for making a video about this. I had never heard of CMT, and much like your friend it seems this is something that affects people who might never recognize indicators until a very late period. It seems to be a fairly rare disease which has little to no impact on life expectancy. I will consider making referrals in the future for those (especially children within the same family) with motor and cognitive delays. Some type of physical therapy may be useful in such cases.

why has the channel gone this long without an upgrade to the microphone or camera :'(

Thank you for this! I needed to hear it.

Yes they work but some will still follow conpiracies ( flat earth, anti vax, and so on). Belief is astrong thing besides how things work and even if they sime time rarely don't. I rather have a living kid myself.

No they don't work.

May I ask what deletion do you have