Join us for a conversation about palliative care. Also known as supportive care, it is a holistic approach that addresses physical, social, emotional, and spiritual needs and can help improve the quality of life for individuals with Parkinson’s disease (PD) and their families.
Dr. Jessica Besbris completed her neurology residency at UCLA in 2015 and her palliative care fellowship at the West Los Angeles VA in 2016. She is board-certified in both Neurology and Hospice and Palliative Medicine. She is an Assistant Professor of Neurology and Medicine at Cedars-Sinai Hospital in Los Angeles, where she provides inpatient and outpatient palliative care consultation to persons living with serious neurological disorders, and serves as Director of Neuropalliative Care.
Emily Downing-Mahli is an Advanced Certified Hospice and Palliative Care, Adult-Gerontology Primary Care Nurse Practitioner who completed her Bachelor of Science in Nursing at the University of Massachusetts, Boston, and Master of Science in Nursing at UCLA. Her career includes managing high-risk patients during post-acute hospitalization, a successful pilot as a post-discharge visit nurse practitioner to reduce hospital readmissions, and a broad range of experience in older adult care from wellness to end-of-life care in various settings. In her current role at Cedars-Sinai, Emily provides outpatient neuropalliative care to persons living with serious neurological disorders.
This program was made possible by our program sponsors, Abbott, Acadia, and Boston Scientific, on September 12, 2024. www.pcla.org.
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Timestamps:
00:00 Introduction
01:11 Speaker Introductions
04:04 Overview
04:22 What We Know
05:45 What is Palliative Care?
07:14 History
08:21 Why Palliative Care in Parkinson’s?
10:17 Who does Palliative Care?
10:42 Palliative Care Specialist Role
12:05 When should a Palliative Care Specialist be considered?
13:02 When do we start Palliative Care?
13:31 Triggers for Palliative Care
14:08 Motor and non-motor symptoms
14:54 Existential and psychological suffering
15:26 Improve QOL
16:12 Always have a backup plan
16:48 Why advance care planning?
17:09 What to expect
19:32 Healthcare Agent/Power of Attorney
20:01 Advance Healthcare Directive
21:14 What is Hospice?
21:38 Hospice Medicare benefit
22:28 Where do you go for Hospice?
22:41 Before Hospice Referral
24:50 The importance of Care Partner support
25:04 Takeaway
25:29 Resources
25:51 Closing
26:16 Q & A
57:35 Final Remarks
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PCLA's online events are intended as an informational and educational resource for the Parkinson's community. Always consult with your healthcare team for medical and treatment advice. The views and opinions expressed by presenters and participants do not necessarily reflect those of PCLA. Sponsorship support does not influence PCLA's content perspective or panelist selection.
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