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SarcoidosisUK
United Kingdom
เข้าร่วมเมื่อ 24 ก.ค. 2019
Welcome to the SarcoidosisUK TH-cam Channel! Here you can find all the latest videos from SarcoidosisUK, including Q&A's with specialists and videos from our Helpline Nurses. Click Subscribe to make sure you never miss any content!
'What Questions Should I be Asking?' SarcoidosisUK Nurses: 2024 SarcoidosisUK Patient Day
The SarcoidosisUK Nurses answer 'What Questions Should I be Asking?', along with questions submitted by sarcoidosis patients.
This session was recorded at our 2024 SarcoidosisUK Patient Day on the 15th October. To watch other recorded content from the day and to read a transcript of the event, please click here: www.sarcoidosisuk.org/information-hub/sarcoidosis-patient-day-2024/
Resources Referenced
King’s Sarcoidosis Questionnaire (‘King’s Quality of Life Tool’): www.sarcoidosisuk.org/wp-content/uploads/2018/12/KSQ_SarcoidosisUK-Paper-Version.pdf
SarcoidosisUK Information Leaflets: www.sarcoidosisuk.org/information-hub/patient-information-leaflets/
SarcoidosisUK Information Hub: www.sarcoidosisuk.org/information-hub/
NICE Clinical Knowledge Summary Sarcoidosis: www.sarcoidosisuk.org/did-you-know-nice-has-a-clinical-knowledge-summary-cks-on-sarcoidosis/
Dr Higgins: Mental Health and the Consequences of Living with a Chronic Disease (SarcoidosisUK Neurosarcoidosis Patient Day 2022): www.sarcoidosisuk.org/mentalhealth-neurosarcoidosis-patient-day-2022/
NHS Scotland BRAN: www.nes.scot.nhs.uk/news/realistic-conversations-shared-decision-making-in-practice/
SarcoidosisUK Nurse Helpline Service: www.sarcoidosisuk.org/support/nurse-helpline/
This session was recorded at our 2024 SarcoidosisUK Patient Day on the 15th October. To watch other recorded content from the day and to read a transcript of the event, please click here: www.sarcoidosisuk.org/information-hub/sarcoidosis-patient-day-2024/
Resources Referenced
King’s Sarcoidosis Questionnaire (‘King’s Quality of Life Tool’): www.sarcoidosisuk.org/wp-content/uploads/2018/12/KSQ_SarcoidosisUK-Paper-Version.pdf
SarcoidosisUK Information Leaflets: www.sarcoidosisuk.org/information-hub/patient-information-leaflets/
SarcoidosisUK Information Hub: www.sarcoidosisuk.org/information-hub/
NICE Clinical Knowledge Summary Sarcoidosis: www.sarcoidosisuk.org/did-you-know-nice-has-a-clinical-knowledge-summary-cks-on-sarcoidosis/
Dr Higgins: Mental Health and the Consequences of Living with a Chronic Disease (SarcoidosisUK Neurosarcoidosis Patient Day 2022): www.sarcoidosisuk.org/mentalhealth-neurosarcoidosis-patient-day-2022/
NHS Scotland BRAN: www.nes.scot.nhs.uk/news/realistic-conversations-shared-decision-making-in-practice/
SarcoidosisUK Nurse Helpline Service: www.sarcoidosisuk.org/support/nurse-helpline/
มุมมอง: 196
วีดีโอ
Conclusion with Sue Wilson: 2024 SarcoidosisUK Patient Day
มุมมอง 513 หลายเดือนก่อน
Sue Wilson, SarcoidosisUK Executive Chairperson, closes the 2024 SarcoidosisUK Patient Day with some final thoughts and hope for the future. This session was recorded at our 2024 SarcoidosisUK Patient Day on the 15th October. To watch other recorded content from the day and to read a transcript of the event, please click here: www.sarcoidosisuk.org/information-hub/sarcoidosis-patient-day-2024/
'The Future of Sarcoidosis Research' with Dr Katie Bechman: 2024 SarcoidosisUK Patient Day
มุมมอง 2533 หลายเดือนก่อน
Dr Katie Bechman presents 'The Future of Sarcoidosis Research', and answers questions submitted by sarcoidosis patients. This session was recorded at our 2024 SarcoidosisUK Patient Day on the 15th October. To watch other recorded content from the day and to read a transcript of the event, please click here: www.sarcoidosisuk.org/information-hub/sarcoidosis-patient-day-2024/
'What Support is Available?' Dr Alice Pearce and Mary Stratton: 2024 SarcoidosisUK Patient Day
มุมมอง 1443 หลายเดือนก่อน
Dr Alice Pearce and Mary Stratton answer 'What Support is Available?', along with questions submitted by sarcoidosis patients. This session was recorded at our 2024 SarcoidosisUK Patient Day on the 15th October. To watch other recorded content from the day and to read a transcript of the event, please click here: www.sarcoidosisuk.org/information-hub/sarcoidosis-patient-day-2024/ If you would l...
'Sarcoidosis, Exercise, and Nutrition' with Professor John Brewer: 2024 SarcoidosisUK Patient Day
มุมมอง 2213 หลายเดือนก่อน
Professor John Brewer presents 'Sarcoidosis, Exercise, and Nutrition', along with questions submitted by sarcoidosis patients. This session was recorded at our 2024 SarcoidosisUK Patient Day on the 15th October. To watch other recorded content from the day and to read a transcript of the event, please click here: www.sarcoidosisuk.org/information-hub/sarcoidosis-patient-day-2024/
What is Sarcoidosis? Professor Simon Hart: 2024 SarcoidosisUK Patient Day
มุมมอง 5383 หลายเดือนก่อน
Professor Simon Hart answers 'What is Sarcoidosis?', along with questions submitted by sarcoidosis patients. This session was recorded at our 2024 SarcoidosisUK Patient Day on the 15th October. To watch other recorded content from the day and to read a transcript of the event, please click here: www.sarcoidosisuk.org/information-hub/sarcoidosis-patient-day-2024/
2024 SarcoidosisUK Patient Day: Introduction
มุมมอง 1643 หลายเดือนก่อน
Sue Wilson and Graham Bloye introduce the SarcoidosisUK 2024 Patient Day. To watch other recorded content from the day and to read the transcript for the video, please click here here: www.sarcoidosisuk.org/information-hub/sarcoidosis-patient-day-2024/
Dr Tarunya Arun - Neurosarcoidosis
มุมมอง 1.2K9 หลายเดือนก่อน
For Sarcoidosis Awareness Month 2024, we reached out to Dr Tarunya Arun, Consultant Neurologist at the University Hospitals Coventry and Warwickshire to create this short video for us. She discusses neurosarcoidosis, some of the challenges with diagnosis and management, and looks at managing some of the wider aspects of this multi-system condition. For more information about neurosarcoidosis, c...
Cardiac Sarcoidosis - Dr Rakesh Sharma, Susan Gilmour, Alexander Liu
มุมมอง 4749 หลายเดือนก่อน
We are delighted to be able to share this video with Dr Rakesh Sharma, Susan Gilmour, Cardiac Sarcoidosis Specialist Nurse, and Alexander Liu, Senior Registrar for the service at the Royal Brompton Hospital. They have kindly recorded this video all about cardiac sarcoidosis, thank you! They discuss cardiac devices, whether you need to inform the DVLA, and the support and information available, ...
Sarcoidosis and the Joints, Muscles and Bones - Dr James Galloway
มุมมอง 3.1K9 หลายเดือนก่อน
SarcoidosisUK asked Dr James Galloway at King's College Hospital London to create a short video on Sarcoidosis and the Joints, Muscles and Bones. He discusses Lӧfgren’s Syndrome, symptoms, and treatment options. Click the link below to find a captioned version of this video. You can also take a look at this page to read more about sarcoidosis and the joints, muscles and bones. Find out more her...
Future Developments - Neurosarcoidosis Patient Day 2023
มุมมอง 354ปีที่แล้ว
Dr Claire Rice gives a presentation on future developments for neurosarcoidosis at the 2023 Neurosarcoidosis Patient Day. This video was recorded on the 23rd September 2023. To watch the other recorded sessions from the event, see our Patient Day Hub: www.sarcoidosisuk.org/information-hub/about-sarcoidosis/sarcoidosisuk-patient-day-hub/
Management of Neurosarcoidosis - Neurosarcoidosis Patient Day 2023
มุมมอง 641ปีที่แล้ว
Dr Tarunya Arun gives a presentation on the management of neurosarcoidosis at the 2023 Neurosarcoidosis Patient Day. This video was recorded on the 23rd September 2023. To watch the other recorded sessions from the event, see our Patient Day Hub: www.sarcoidosisuk.org/information-hub/about-sarcoidosis/sarcoidosisuk-patient-day-hub/
Clinical Manifestations of Neurosarcoidosis - Neurosarcoidosis Patient Day 2023
มุมมอง 770ปีที่แล้ว
Dr Victoria Singh-Curry gives a presentation on the clinical manifestations of neurosarcoidosis at the 2023 Neurosarcoidosis Patient Day. This video was recorded on the 23rd September 2023. To watch the other recorded sessions from the event, see our Patient Day Hub: www.sarcoidosisuk.org/information-hub/about-sarcoidosis/sarcoidosisuk-patient-day-hub/
Introduction - Neurosarcoidosis Patient Day 2023
มุมมอง 412ปีที่แล้ว
SarcoidosisUK Senior Executive Leo welcomes attendees to the Neurosarcoidosis Patient Day 2023 This video was recorded on the 23rd September 2023. To watch the other recorded sessions from the event, see our Patient Day Hub: www.sarcoidosisuk.org/information-hub/about-sarcoidosis/sarcoidosisuk-patient-day-hub/
Q&A Session - Neurosarcoidosis Patient Day 2023
มุมมอง 431ปีที่แล้ว
The Neurosarcoidosis Patient Day 2023 speakers answer questions submitted by sarcoidosis patients. This video was recorded on the 23rd September 2023. To watch the other recorded sessions from the event, see our Patient Day Hub: www.sarcoidosisuk.org/information-hub/about-sarcoidosis/sarcoidosisuk-patient-day-hub/
What Causes Sarcoidosis? - Neurosarcoidosis Patient Day 2023
มุมมอง 844ปีที่แล้ว
What Causes Sarcoidosis? - Neurosarcoidosis Patient Day 2023
Introduction - Sarcoidosis Patient Day 2023
มุมมอง 471ปีที่แล้ว
Introduction - Sarcoidosis Patient Day 2023
Non-pharmacological Treatment Options of Systemic Sarcoidosis - Sarcoidosis Patient Day 2023
มุมมอง 961ปีที่แล้ว
Non-pharmacological Treatment Options of Systemic Sarcoidosis - Sarcoidosis Patient Day 2023
Pharmacological Treatment Options of Systemic Sarcoidosis - Sarcoidosis Patient Day 2023
มุมมอง 570ปีที่แล้ว
Pharmacological Treatment Options of Systemic Sarcoidosis - Sarcoidosis Patient Day 2023
Significant Extra-pulmonary Involvement: The Heart - Sarcoidosis Patient Day 2023
มุมมอง 328ปีที่แล้ว
Significant Extra-pulmonary Involvement: The Heart - Sarcoidosis Patient Day 2023
Significant Extra-pulmonary Involvement: The Central Nervous System - Sarcoidosis Patient Day 2023
มุมมอง 282ปีที่แล้ว
Significant Extra-pulmonary Involvement: The Central Nervous System - Sarcoidosis Patient Day 2023
The Challenges in Diagnosis and Management of Sarcoidosis - Sarcoidosis Patient Day 2023
มุมมอง 452ปีที่แล้ว
The Challenges in Diagnosis and Management of Sarcoidosis - Sarcoidosis Patient Day 2023
A message from Karen Duffy for Sarcoidosis Patient Day 2023
มุมมอง 1.2Kปีที่แล้ว
A message from Karen Duffy for Sarcoidosis Patient Day 2023
A Day in the Life of a Neurosarcoidosis Patient
มุมมอง 1.5Kปีที่แล้ว
A Day in the Life of a Neurosarcoidosis Patient
Meet SarcoidosisUK Charity Ambassador Kemi
มุมมอง 3652 ปีที่แล้ว
Meet SarcoidosisUK Charity Ambassador Kemi
Treatment for Sarcoidosis of the Eye - Sarcoidosis of the Eye Patient Day
มุมมอง 9582 ปีที่แล้ว
Treatment for Sarcoidosis of the Eye - Sarcoidosis of the Eye Patient Day
Symptoms, Impacts and the Need for More Research - Sarcoidosis of the Eye Patient Day
มุมมอง 5842 ปีที่แล้ว
Symptoms, Impacts and the Need for More Research - Sarcoidosis of the Eye Patient Day
Visual Impairment as a Result of Neurosarcoidosis - Sarcoidosis of the Eye Patient Day
มุมมอง 9422 ปีที่แล้ว
Visual Impairment as a Result of Neurosarcoidosis - Sarcoidosis of the Eye Patient Day
Anatomy of the Eye & How does Sarcoidosis of the Eye Manifest? - Sarcoidosis of the Eye Patient Day
มุมมอง 9092 ปีที่แล้ว
Anatomy of the Eye & How does Sarcoidosis of the Eye Manifest? - Sarcoidosis of the Eye Patient Day
Surely wearing a badge encourages people to get close to you to read it ????
Dear uk Government, can we please build rehabs for the less fortunate in London please! Can we build a building where people can stay for as long as they can get of a drug that there addicted too! Class a, b, and c drugs please! Can there be professional therapy classes to help you get of the drug your hook on please!! This is needed asap!!